Top > Health > Conditions and Diseases > Musculoskeletal Disorders > Connective Tissue > Marfan Syndrome

  See also:

• Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome  (28)
• Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome  (13)

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	Japanese  (3)   Spanish  (6)

» American Heart Association - Marfan's Syndrome - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

» Canadian Marfan Association - Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.

» A Diary about Marfan's - Marfan's patients diary of the diseases events in her life. Includes a list of links.

» International Federation of Marfan Syndrome Organizations - A global information center providing links to Organizations around the world.

» Life and Issues of Marfan's Syndrome - Personal site by which describes the pathology and gives a bit of advice.

» Living With Marfans - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

» Marfan Association UK - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

» Marfan Support and Information - Support group in New South Wales, Australia.

» Marfan Syndrome - Article from eMedicine.

» Marfan Syndrome - A guide to this connective tissue disease.

» Marfan Syndrome - Online chapter from The Merck Manual of Medical Information.

» Marfan Syndrome - A Question-Answer format page of information.

» Marfan Syndrome: Does Diet Play a Role - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

» Marfan-List - Information about an e-mail mailing list. Also includes links to other online support groups.

» Marfans Research Foundation - Irish charity with information on fund raising activities and the condition.

» MFS Type 1 Fibrillin Gene - Major resources listed as well as genetic information.

» The Mystery of Akhenaten: Genetics or Aesthetics? - A history of the pharaoh along with theories applied to what he may have had, including Marfan's.

» National Marfan Foundation - Providing accurate and timely information about the disorder to patients, family members and physicians.

» Polish Marfan Association - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.

» Questions and Answers about Marfan Syndrome - From the National Institutes of Health.

» Slovak Marfan Association - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

» South African Marfan Syndrome Organisation - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

» Swedish Marfan Association - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.

» Univ. of Washington - Marfan Syndrome - What the disease is and includes the impacts on daily life.

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